utah rare disease day platinum sponsors

Upcoming Events


Join us in our journey and celebration of RARE is Everywhere! Attend Rare Disease Day 2016 Events.

It’s time! Rare Disease Day 2016 events are fast approaching. It’s inspiring to see all the hard work, passion, and dedication going into this year’s activities. It’s going to be the biggest and most influential year of RARE to date!

Explore the events below to see what we and our beloved sponsors have in store for Utah this February. Contact us with any questions or to volunteer for any of the events listed. We appreciate your help!

“The secret to CHANGE is to focus all your energy not on fighting the old, but on building the new.” — Socrates

Rare Disease Day Symposium - Families/Advocates

Join advocates, researchers, clinicians, medical students, health & wellness professionals, and Utah rare families for the Rare Disease Day Symposium where Personalized Medicine and the Rare & Undiagnosed Program, Penelope, is discussed in detail.
Starts:
February 27, 2016
1:00 PM
Ends:
February 27, 2016
5:00 PM
FREE
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Rare Disease Day Symposium - Families/Advocates
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Rare Disease Day Symposium - Organization/Non-profits

Join a researchers, clinicians, medical students, health & wellness professionals, and Utah rare families for the Rare Disease Day Symposium where Personalized Medicine and the Rare & Undiagnosed Program, Penelope, is discussed in detail.
Starts:
February 27, 2016
1:00 PM
Ends:
February 27, 2016
5:00 PM
FREE
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Rare Disease Day Symposium - Organization/Non-profits
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Tables sponsored by Recursion Pharmaceuticals. Register now for free!

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If you are interested in becoming a sponsor please choose the level below and visit http://utahrare.org/sponsors/ for more information!

Your tax-deductible contributions will have a profound influence on the lives of the tens of thousands of families impacted by a rare or undiagnosed disease in Utah alone. Contact Gina Szajnuk for further sponsorship information

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Utah Rare Disease Day at the Capitol

Rare Disease Day takes place on the last day of February each year. In Utah, we’re planning a two-day celebration of all our loved ones who continue to inspire and motivate us each day to make a difference in their lives. We call upon Utah’s key influencers to join together and do something remarkable – save lives. Policy makers, public authorities, industry representatives, researchers, health professionals and all those in our community who have a genuine interest in rare diseases are invited to advocate for our children and loved ones living with a rare and undiagnosed disease. Businesses and organizations throughout Utah have the opportunity to sponsor this powerful event and milestone in our advocacy for RARE Families.
Starts:
February 29, 2016
3:00 PM
Ends:
February 29, 2016
5:00 PM
Utah Rare Disease Day at the Capitol
Passed Dates:
Starts:
February 29, 2016
3:00 PM
Ends:
February 29, 2016
5:00 PM
Starts:
February 29, 2016
3:00 PM
Ends:
February 29, 2016
5:00 PM
FREE
Event Passed
Utah Rare Disease Day at the Capitol
Regular (FREE)
Spots left: 1397
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Jazz Game

Enjoy a Utah Jazz game with Rare Families from all over the state. The kids will join the players on the court for the anthem and a half-time announcement.
Starts:
February 27, 2016
7:30 PM
Ends:
February 27, 2016
10:00 PM
Jazz Game
Adult/Child (FREE)
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Tickets must be picked up at the Utah Rare Day Symposium

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RARE Teen Photo Project Sponsored by Aware of Angels, RUN and Utah Rare!

Season Atwater, Aware of Angels, will be the photographer of an extremely special project. We are looking for 10 RARE teenagers, between the ages of 13 years old and 18 years old. If you are a RARE or UNDIAGNOSED teenager, boy or girl, please ask your parents for permission to email a photo as well as a summary about yourself to Gina Szajnuk at gina@rareundiagnosed.org and Season Atwater at seasonatwater@gmail.com. We are also looking for make-up artists, hair stylists and clothing vendors for a special collaboration.

Starts:
January 23, 2016
11:00 AM
Ends:
January 23, 2016
4:00 PM
FREE
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RARE Teen Photo Project Sponsored by Aware of Angels, RUN and Utah Rare!
Regular (FREE)
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please ask your parents for permission to email a photo as well as a summary about yourself to Gina Szajnuk at gina@rareundiagnosed.org and Season Atwater at seasonatwater@gmail.com.

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Rare Disease Day Education Room

In partnership with RUN, Utah Rare, and NORD, the University of Utah will host a free Education Room at the Marriott. Fun, educational activities for all ages - including a chance to touch real human brains - will teach about health, medicine, and research. Registration is not required for the Education Room. Sponsored by the Neuroscience Initiative at the University of Utah.
Starts:
February 27, 2016
1:00 PM
Ends:
February 27, 2016
5:00 PM
FREE
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Rare Disease Day Education Room
Regular (FREE)
Spots left: 259
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No registration is required. Please register for the Utah Rare Day Symposium and indicate if you will be taking advantage of this event.

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