Join us for the 2018 Utah Rare Symposium

Utah Rare is a coalition of rare disease stakeholders formed to organize Utah’s recognition and support of our Rare Community.

Throughout the world, Rare Disease Day events take place on the last day of February.

Join Utah Rare for a two-day event as we raise awareness and celebrate the ongoing inspiration and motivation all loved ones with a rare disease continue to provide us each day. Join us!

Our goal is to raise awareness amongst the general public and decision-makers regarding rare diseases and the life-long impact they have on patients’ lives.


Rare Disease Day 2018

We call upon Utah’s key influencers to join together and do something remarkable – save lives. Policy makers, public authorities, industry representatives, researchers, health professionals and all those in our community with a genuine interest in making a real difference in the rare disease world, are invited to advocate for our children and loved ones living with a rare or undiagnosed disease.

Letter to YOU

rare disease day community letter