Throughout the world, Rare Disease Day events take place on the last day of February.
Join Utah Rare for a two-day event as we raise awareness and celebrate the ongoing inspiration and motivation all loved ones with a rare disease continue to provide us each day. Join us!
We call upon Utah’s key influencers to join together and do something remarkable – save lives. Policy makers, public authorities, industry representatives, researchers, health professionals and all those in our community with a genuine interest in making a real difference in the rare disease world, are invited to advocate for our children and loved ones living with a rare or undiagnosed disease.