You’re receiving this as an organization that has signed-on in support of the OPEN ACT (Orphan Product Extensions Now, Accelerating Cures & Treatments). As you may know, the OPEN ACT was voted on and passed in the House of Representatives last July as part of the 21st Century Cures Act (HR 6). However, the companion legislation in the Senate has since stalled and with the coming election, we are simply running out of time.
Please take one minute to read our letter to the Senate and to sign-on to urge them to take up this vital legislation. Already, Research!America, the National Health Council, Parent Project Muscular Dystrophy, and Global Genes have signed-on, along with dozens of other organizations.
Thanks again for your support. I hope all is well with you!