Join us in our journey and celebration of RARE is Everywhere! Attend Rare Disease Day 2018 Events.
It’s time! Rare Disease Day 2018 events are fast approaching. It’s inspiring to see all the hard work, passion, and dedication going into this year’s activities. It’s going to be the biggest and most influential year of RARE to date!
We invite patients, parents, researchers, clinicians, and advocates to join us for our annual Utah Rare Symposium. Adults, children and families are all invited to attend. Our symposium provides opportunities to learn together, support each other, connect with resources and network. Enjoy some hors d’ oeuvres and register on site for FREE in between 11:30am and 12:30pm. Registration includes free T-shirts for attendees. Various sizes will be available on a first come first served basis.
Symposium Agenda (subject to changes)
11:30-12:30 Registration and hors d’ oeuvres
12:45-1:15 Intentional Networking
1:30-2:45 Breakout Sessions
Undiagnosed- Genetics 101
After the Diagnosis: Rare and Ultra Rare
3:00-4:00 Advocacy Panel
Contact Tristin West at [email protected] with any questions, to sponsor the symposium or to reserve a table for your organization/group/company/foundation.
RSVP by February 17, 2018
480 Wakara Way, Salt Lake City, UT 84108