What does Rare Disease Day mean to you?
Invite your legislators to join us at the RDD State House Event
Rare Disease Day at Utah State House 2015
Rare disease advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of Rare Disease Day in the US, to organize this special event for legislators, legislative staff, the public and the media.
The event will be held on Friday, February 27, 2015
State Capitol Building
350 North State Street, Salt Lake City, UT 84114
The purpose of this event is to raise awareness at the state level for the 1 in 10 individuals living with a rare disease and the challenges they face. Many important decisions related to rare diseases are made at the state level, and the implementation of the Affordable Care Act has highlighted the increasingly important role of state policies and programs in assuring that the healthcare needs of the American public are addressed. Connect with and hear from patients, caregivers and other stakeholders about the challenges and triumphs of living with rare diseases in the great state of Utah.
Educating state legislators and their staff members is extremely important and we are thrilled that you have decided to participate!
Event LocationUtah State Capitol Building
350 North State Street
Salt Lake City, UT 84114