The RARE TEEN PHOTO SHOOT was a HUGE success!  Season Atwater, Aware of Angels, is such a talented photographer!  Thank you to Angel Benson, Maddie Benson, Julie Jackson, Kristen Packard, Rebecca Parker, all of the Paul Mitchell students and everyone else that was involved! Thank you to all of our RARE TEENS that came and ROCKED it! Thank you to their families for their support of this photography project!  We can’t wait for their pictures to be at the Utah Rare Symposium and the Utah Rare State House Event!  

Yesterday was a dream come true! When I looked around the room, I saw our Rare family growing. I saw new friendships made and other friendships deepened. I saw mothers and fathers mingling and sharing about their journeys living in the world of the rare and undiagnosed.

I saw young beautiful teenagers coming out of their shells and blossoming into real models!  They have such strength and such pain. They persevere every single minute of every single day. They are a true inspiration to all of us. It is an honor and a privilege to be a part of this project. Thank you, Season, for your continued hard work and for your wonderful gift of photography. You have such a huge heart and we ALL love you!

Katie Nuffer (Megan Nuffer)
Harlie Valdez (Stephanie & Gabe Valdez)
Hailey Sampsel (Amy Sampsel)
Rachel Nielson (Kate Nielson)
Michael George (Sarah George)
Ricki Jensen (Janine Jensen)
Jaderee Eakle (Robbi Eakle)
Katie Maguire (Maryel Maguire)
Aliyah Peedle (Amy Peedle)
Preston Zundel (Tammy Zundel)
Michael Lee (Katrena Lee)
Season’s Pictures coming soon!!! Stay tuned!!!!

About the author

Gina

Gina began working tirelessly as an advocate for the rare and undiagnosed diseases community several years ago after her and her family moved to Utah. She is the Co-founder and Executive Director of the Rare and Undiagnosed Network (RUN), Chair of Utah Rare, and Utah Ambassador for National Organization on Rare Diseases (NORD).

Gina is currently undiagnosed and the mother of three children with an undiagnosed genetic dysfunction. She is advocating for clinical whole genome sequencing covered by insurance companies and hopes to help rare and undiagnosed families emotionally and financially.

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