Utah rare

Utah Rare is a coalition of rare disease stakeholders formed to organize the statewide recognition of Rare Disease Day.

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage.

The political momentum resulting from Rare Disease Day also serves advocacy purposes. It has notably contributed to the advancement of national plans and policies for rare diseases in a number of countries.

Even though the campaign started as a European event, it has progressively become a world phenomenon, with the USA joining in 2009, and participation in a record-breaking 84 countries around the world in 2014. We hope many more will join in 2015. Some countries have decided to raise rare disease awareness further, for example, Spain declared 2013 as the National Year for Rare Diseases.

Our objective is for the World Health Organization to recognise the last day of February as the official Rare Disease Day and to raise increasing awareness for Rare Diseases worldwide.

On rarediseaseday.org you can find information about the thousands of events happening around the world to build awareness for people living with a rare disease and their families. If you are planning an event, register your event details on our Post your Event page to get your event listed on the site.

 

Theme of the year 2015- Living with a rare disease. 

Slogan: Day-by-day, hand-in-hand.

 

theme2015

2015 marks eight consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2015 puts the focus on the daily lives of patients, families and caregivers who are Living with a Rare Disease.

Over 6000 different rare diseases have been identified to date, directly affecting the daily life of more than 30 million people in Europe alone. The complex nature of rare diseases, coupled with limited access to treatment and services, means that family members are often the primary source of solidarity, support and care for their loved ones. The Rare Disease Day 2015 theme Living with a Rare Disease pays tribute to the millions and millions of parents, siblings, grandparents, spouses, aunts, uncles, cousins, and friends whose daily lives are impacted and who are living day-by-day, hand-in-hand with rare disease patients.

Typically chronic and debilitating, rare diseases have enormous repercussions for the whole family. Living with a rare disease becomes a daily learning experience for patients and families. Though they have different names and different symptoms, rare diseases impact the daily lives of patients and families in similar ways.

  • How to find a diagnosis?
  • How to access treatments?
  • How to find appropriate expertise?
  • How to work with a team of caregivers, such as doctors or physical therapists, and other healthcare professionals and coordinate care between them?
  • How to operate special equipment?
  • How to administer treatments?
  • How to identify and access social services?
  • How to manage the economic burden of living with a rare disease?
  • How to ensure the well-being of the entire family and balance priorities?

Patient organisations become a crucial source of information, experience and resources. Day-by-day, hand-in-hand, together we present a united voice to advocate for the treatments, care, resources and services we all need. Patients, families and organisations are pivotal to the momentum of creating solutions for the daily challenges of living with a rare disease in solidarity with all stakeholders – caregivers, healthcare professionals, specialised social services, researchers, pharmaceutical companies, policy makers, and regulatory bodies.

Internationally, it is essential to send a strong message of solidarity to the countless rare disease patients and families throughout the entire world. Together, we can transform the individual experience of patients and relatives around the world into collective actions, support, advocacy and community building.

In Europe, there are many initiatives designed to improve daily life: Developing and facilitating access to diagnostics and treatments can change the day-to-day reality for someone with a rare disease.  Identifying and improving access to specialized social services for rare diseases enables families to improve the quality of daily life. RareConnect, EURORDIS’ moderated multi-language online social forum, allows people with rare diseases to break their isolation and to connect and share experiences. Please visit the Living with a rare disease section of the EURORDIS website to learn more about the daily challenges of living day-by-day, hand-in-hand with a rare disease and the ways in which patients and families are meeting these challenges.

 

Who can participate?

Anyone can participate in Rare Disease Day. Whether your a patient, family member, caregiver, healthcare professional, educator, friend, social services, researcher, student, pharmaceuticals, policy maker or advocate-we all work together and can all make a difference.

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